11 months old today!

What a crazy week! Caroline has been to 2 doctor appointments, and was a champ at both of them!
AND our Sweet Caroline turns 11 months old today! I can not even believe it. I can not believe this time last year, Web and I were seriously crying most nights wondering what Caroline might bring to our family. By this time, we knew she didn't have ACH or HCH and we just knew she was going to be ok. No way would she have "worst case scenario" as the high risk counselor told us she could have. But lo and behold, our Sweet Caroline had OI, the "worst case scenario" and our journey of unknowns began.
One of our dr appts this week was with a developmental pediatrician, Dr. Brennan. Who knew they even existed? He treats kids with osteopenia, osteoporosis, and OI. He is literally 20 minutes from our house. He has a dozen or so OI patients and he gives them PAM (pamidronate). This is great news! We asked him his criteria for giving PAM. NIH said they have to be at least 2 years of age. Dr.Brennan has 2 questions for the parents.
1. Does she have pathologic fractures? YES, right femur.
2. Does OI interfere with developmental milestones? YES, C is not crawling or standing.

So, we meet his criteria and we can start PAM asap. We did talk to him about the OI clinic in Omaha and he thought it was a great idea to get as much info from as many doctors as possible. He even said he would work with the endocrinologist in Omaha on treatment plan. Dr. Brennan also has a pediatric physiatrist/rehabilitation medicine doctor who works with OI patients. We meet with him end of October and hoping he can help Caroline learn to walk and crawl.

We also met with our orthopedic, Dr. Herndon this week. He was very impressed with Caroline's healing from her fractures this summer. He is still stumped about her hip dysplasia but we are hoping that the OI ortho expert in Omaha might have an idea. Dr. Herndon set us up with an appt next week at the orthotics clinic. We are trying to find a way for Caroline to stand up without breaking a leg bone.

As you can see it has been a hell of a week. Lots of appts, all for the good. Lots of info, all more confusing!
But we are going to keep up with the journey and maybe one day we might be a little ahead of the journey.
Lots of love!
Kristine